Ménière's Society

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Our aims

  • To support our members, their families or carers, and improve their quality of life.
  • To provide information about Ménière's disease to members, health professionals and the general public.
  • To raise public awareness of Ménière's disease.
  • To encourage research into the causes and treatment of Ménière's disease.
  • To monitor world-wide developments in Ménière's disease management.
  • To provide a resource for members on Ménière's related subjects including the availability of services, complementary therapies, books and literature.
  • To encourage members to lend each other help and mutual support.
  • To co-operate with other organisations having similar objectives to those of the Society.

How we meet our aims

  • We make available Information Sheets about Ménière's disease. These include information on medical management, surgery, tests and investigations, welfare benefits available, travel problems, coping with symptoms and psychological aspects of Ménière's.

  • We supply all members with a Contact List enabling them to get in touch with other members for mutual support. We encourage 'networking' between members and the formation of local groups of sufferers.

  • Four times a year we publish and distribute SPIN, the Society's widely appreciated magazine, which contains a broad range of news, information, members' letters and topical reports relating to Ménière's.

  • Once a year we hold a Conference and AGM at which prominent speakers give presentations on topics relevant to Ménière's disease.

  • Telephone support and information is available during working hours.

  • The Society actively encourages and supports research projects related to the cause and treatment of all aspects of Ménière's disease.

  • Both the Society's members and local Ménière's groups are very active in increasing public awareness of Ménière's disease and raising funds for the Society.

  • The Society encourages the use of the media, including TV, radio, newspapers and magazines, both to increase public awareness of Ménière's disease and the severe challenges it presents sufferers, and to raise funds to support the Society's activities.

  • In order to reach as many people as possible with the disease the Society participates in an RNID distribution scheme which places leaflets in hospitals and Ear Nose & Throat Departments nationally.

  • The Society maintains an active relationship with interested doctors and researchers. We encourage their authoritative contributions to SPIN and the Society's Information Sheets. In return we provide a valuable information source for their Ménière's patients and when possible and appropriate give financial support for suitable projects.

  • We maintain updated lists of published work relevant to Ménière's disease. This includes information in the medical, psychological, physiological and disability fields.

  • The Society maintains relations with other relevant organisations including the British Tinnitus Association, Hearing Concern, the Royal National Institute for Deaf People, The Long Term Medical Conditions Alliance and other disability groups. This fosters the co-ordination of efforts on current medical, social and legislative issues while ensuring that as many Ménière's sufferers as possible are made aware of the Society and the support and service it can offer.

Future plans

  • To continue to improve both the quality and scope of the information available to members.
  • To continue to improve the quality and content of SPIN, the Society magazine, whilst retaining its friendly and accessible style.
  • To further expand and develop contacts with interested health professionals.
  • To continue our drive to increase membership of the Society, thus directly enabling us to help more people with Ménière's disease.
  • To increase fund-raising activities in order to enable improved and broader services to members.
  • As funds become available, to become more active in supporting research activities aimed at achieving a better understanding of the cause and nature of Ménière's disease.
  • To increase our links with other organisations, both in the UK and abroad, in order to ensure a co-ordinated effort in all areas of concern to the Ménière's Society and its members.